Saturday, September 05, 2015

Caregiver: Grieving X 2 And More

The Pink House On The Corner
Friday, August 28, 2015

I don't even know what to say --- I think all these things to write and then I stare at the keyboard thinking --- what? What do I say?

All I know is I'm not in a good place --- and it sucks and it's stupid.

I am not dealing with this so well. And few people even comment here, anymore -- I feel so alone, I feel like no one cares. I wonder why I even blog ---

And I know, everyone thinks I am "so strong" --- oy

I'm not. I guess I'm just supposed to "pop up" and "go on" -- shoot. That's not happening. Sorry.

I have been grieving for so long -- it's stupid...  "Stupid" seems to be my new word.  Everything is stupid, these days. My whole life seems stupid, right now.

But back to grieving ---

I have been grieving for more than 4 years.  I grieved the loss of Bob -- Bob pre-stroke (old Bob), the man he used to be, before the stroke - I'm talking about the charming, articulate guy with the 145 IQ, who used to make me laugh. The guy (pre-stroke) who fixed things and loved to dicker for deals when we were antiquing -- the guy who used to drive The Green Machine, his arm around me, windows open, going for a day trip. Damn, I missed and mourned that Bob. For so long after the stroke.

And I went through those grieving steps, you know, the Denial, Bargaining, Anger, etc. finally getting down to Acceptance -- which I finally did about a year ago, Acceptance that Bob (the new Bob) would never fully recover and, OK, we would deal with wheelchairs and immobility and feeding tubes and aphasia and but still, cognitively, he was getting better, so I had hope and plans for "new Bob" ---

Plans for a therapy room here at the new house (because we finally had money from the settlement) , buy a NuStep and put in bars and hire a PT for at-home therapy, also putting in a pool for aqua therapy, hoping this would make him stronger.  I would have been happy if he could just get to a pivot and stand sort of mobility. It was worth working toward. And having the Bobmobile so we could go out and about, do something fun now and then. Trying to get that new power chair more comfortable so he could tolerate being up for more than an hour --- just got a RoHo cushion approved by the insurance (no small feat, took months!) and was still trying to get adjustments to the chair, etc.  I actually thought that I could get an OT here to figure out how to get an art easel that he could reach from the power chair as he stopped drawing because of his neck issue which caused him so much pain but thinking maybe in the chair, instead of in bed, it might be a better position and I thought we could maybe figure something out to get him drawing again. And I had so many plans and hopes for him. I even found a group that exhibits art from disabled people and thought that, maybe, we could do that and wouldn't that be great? I had so many plans -- what we could do or try to make a new life for Bob and me.

And then he died. In his sleep. And after all of that, it seems so stupid. And fruitless.

Damn. And now I am grieving again, I'm now grieving for "new Bob" and also "old Bob". So I'm grieving two Bobs -- and I know, that sounds really really stupid....

Everyone seems to think I should get over it. Be over it. Go on etc.

And I am sorry that I am not over it and I am still lost now.  I don't even know what to do. I am a mess. I don't know what to do -- everything I planned, everything I worked toward (the lawsuit, the new house, the wheelchair accessibility renovations,  etc.) was for Bob and now he's not here and I don't know what to do now because everything came to a screeching halt and -- I don't know where to go from here.

And I just thank God that Ripley and Kona are here -- giving me a reason not to jump off a bridge.

If you are reading this, and care, please leave a comment. I stupidly need comments/support right now.

And sorry to be so needy...

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